Learn from Meghan how not to poke the bear of scleroderma and more about HSCT at Duke (Ep. 39)

Warrior: Meghan Newell Davis
AI: Scleroderma
HSCT: 1/22/19 at Duke University
Superpower: Unbreakable

Have you ever watched a doctor google your symptoms to find help? How often do you take the little things in life for granted? As you move through life, do you take caution not to ‘poke the bear’?

HSCT Warriors Podcast S4.Ep. 3

Celebrating a son just one year younger than her new immune system, Meghan offers our listeners a glimpse into life with a very aggressive form of scleroderma and her experience with HSCT at Duke University. The highly competitive-Ironman-Nutritionist suddenly found her body to be suddenly sore, stiffening and stonelike. As she continued struggling to hide invisible symptoms that were physically shutting down her body, she spent weeks visiting doctors, researching her symptoms, and experimenting with various alternative remedies to find some relief.

Tune in and hear more about the freight train that wrecked Meghan’s capacity to function in everyday life despite not looking sick. Once she was connected with a rheumatologist, Meghan finally had diagnoses of multiple autoimmune diseases and was fast-tracked to HSCT at Duke University. Through HSCT Meghan gained lifelong warrior friends and family, including her doctors, nurses and care team and shares so many valuable insights!

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Resources:
Meghan’s race to HSCT
Meghan_fit4life on Instagram
Dr. Twining, Myrtle Beach
Dr. Baker Frost, Medical University of South Carolina

Find confidence with Jess and learn about HSCT in Calgary (Ep. 38)

Warrior: Jess Faulds
AI: Multiple Sclerosis
HSCT: July 2019 in Calgary, CA
Superpower: Sensation and mental strength 

How do you react when people stare at you? At what age did you feel confident about managing your options with autoimmune disease? Where do you find faith in humanity?

HSCT Warriors Podcast S4.Ep. 2 (1)

Being diagnosed with MS at 15 years young certainly wasn’t a walk in the park for Jess, but it motivated her to keep active and persistent with staying informed about her options. As someone raised to value movement and nutrition, Jess was sure to incorporate these cornerstones throughout her experience with HSCT. 

Tune in and learn more about her routines that promoted a quick rebound from HSCT and the holistic approach to HSCT care and treatment at the clinics in Canada in Calgary and Ottawa.   

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Resources:
Wrap Me Cool wraps
Jess Faulds on Instagram: allthrightbites
MS Society of Canada

Season Four Update with Ali Strong (Ep. 37)

Warrior: Ali Roberts
AI: Multiple Sclerosis
HSCT: 11/6/17
Superpower: Gratitude

Do you believe in the power of self-talk?  That the words you say to yourself become the narrative that you fulfill?  Where do you find yourself bringing attention?

Copy of HSCT Warriors Podcast Ep. 48 (1)

Another season brings another conversation with Ali Strong about her experiences post-HSCT with diet and nutrition, exercise, stress, shingles, mindset, wellness, and personal challenges to continue promoting wellness, healing and longevity. Tune in and learn how Ali navigated wellness through the flu and shingles at two years post HSCT, then take away some valuable insights about life that she shares from her coaching perspective.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.
_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Revisit Tammy’s courageous story of resilience through HSCT

Warrior: Tammy Richert
AI: Primary Progressive MS
HSCT: 2013, AA Maximov Hospital, Moscow Russia
Superpower: Incredible hulk-type shifts between calm intention and strength to power through

How intentional are you about making memories? Which side of the coin are you on? Who are the people in life that you can count on to run with you?

HSCT Warriors Podcast Ep. 48

After she spent years managing another autoimmune issue, Tammy found HSCT in her research to learn more when she was diagnosed with primary progressive multiple sclerosis. After being denied elsewhere for HSCT due to the PPMS diagnosis, she found that Russia offered a path to HSCT that Tammy chose to run.

Finding a new sense of community among fellow HSCT Warriors has been an uncomparable support for Tammy as she realized that even after a successful transplant, she relapsed after three years post-HSCT and is considered a non-responder. Tune in and be inspired by the brave vulnerability that Tammy shares in her perspective ‘on the flip side of the coin.’

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

We would definitely love to learn how the podcast has helped your journey with autoimmune disease… if you could take a moment to share your story, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Resources:
The MS Gym Podcast
BrookeSlick.com

Revisit Allison’s courageous journey to HSCT and her efforts to spread hope and awareness

Warrior: Allison Carr
AI: Multiple Sclerosis
HSCT: 2014/15, Northwestern Memorial, Chicago IL
Superpower: Survival

To what extent do your doctors have your best interest in mind? Does the medical community you depend on even have accurate information about HSCT? 

HSCT Warriors Podcast Ep. 47 (2)

After suffering symptoms without a diagnosis for twenty years, Allison felt completely ignored by her medical community. As a busy mom in a busy career with a busy life, Allison didn’t find much time for her diagnosis of multiple sclerosis, let alone the frightening side effects of pharmaceuticals. Despite the opinions of multiple doctors, when family friends connected her to the possibility of HSCT in a clinical trial, she did her research and pursued HSCT without hesitation.

Tune in to hear the lessons learned as Allison survived a see-saw insurance battle, challenges to her marriage, and what happened when Allison realized that the little she knew about HSCT was more than what her doctors knew or willing to learn. In listening to Allison’s journey, we hope you’ll be inspired to become your own self-advocate and join her in efforts to spread hope and awareness.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide so reach out if you’re interested in sharing your story. We would definitely love to learn how the podcast has helped your journey with autoimmune disease… if you could take a moment to share your story, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.
______________________________________________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

 

Revisit Keri’s remarkable journey and be inspired to persist in self-advocacy

Warrior: Keri Huff
AI: Tumefactive multiple sclerosis
HSCT: July/August, 2010
Superpower: Self-advocacy

When you try to advocate for your health and doctors turn you away, how do you persist? Have you ever reflected on how much time you have? Where do you find beauty each day?

HSCT Warriors Podcast Ep. 46 (1)

At just 28 years old, Keri started experiencing odd symptoms that countless doctors ignored and dismissed. As she persisted through debilitating pain and extreme fevers, an MRI finally evidenced several masses on her brain. After persisting through additional testing and a ten hour brain surgery, she learned she was pregnant but did not walk away with a diagnosis.

When her masses eventually returned, she continued fighting for answers and connected with Dr. Burt at Northwestern. Sharing her remarkable journey battling multiple autoimmune diseases, be inspired to learn how Keri fought for ten years struggling to find answers and relief from her pain as a one in 20,000,000 statistic, only to face death with the possibility of HSCT.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide so reach out if you’re interested in sharing your story. We would definitely love to learn how the podcast has helped your journey with autoimmune disease… if you could take a moment to share your story, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

 

Revisit lessons of gratitude and positivity with Ali Strong

Warrior: Ali Strong
AI: MS
HSCT: 11/6/17
Superpower: Gratitude

Where do you find yourself bringing attention in life? Are you able to find goodness with your current state of being? What have been your most important lessons in life? 

HSCT Warriors Podcast Ep. 45

Embrace a shift from the typical podcast interview and listen in on Jen’s conversation to check in with Ali Strong on her HSCT journey, and share more about the new nonprofit, HSCT Warriors, Inc. for which Ali serves on the Advisory Board. Tune in and be inspired to integrate strategies that calm the mind and nerves, and be encouraged to find ways to shift the sense of control, or make time in a busy day to nourish yourself.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

It has been great to connect with Warriors worldwide so reach out if you’re interested in sharing your story. We would definitely love to learn how the podcast has helped your journey with autoimmune disease… if you could take a moment to share your story, leave us a comment on instagram or share feedback on our website. We appreciate all your support, and if you’re looking to contribute in other ways – including volunteering or monetarily – we’d love to hear from you. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

_________________________________
Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Join Dave in sharing glad tidings, health and wellness this new year

Warrior: Dave Carey
Snowflake: Multiple Sclerosis
HSCT: 09/11/17
Superpower: New perspective

What is your potential for recovery? Do you have strategies to support your self in recovery? What mindset keeps you engaged? Join us in this last episode of Season 2 and catch up with Dave, learn strategies for recovery, and hear exciting updates!

HSCT Warriors Podcast Ep. 44 (1)

As his positive outlook on HSCT has carried forward to influence his perspective on life, Dave continues to experiment on how his post-HSCT body will react to the challenges of moving to a different climate, raising a toddler, and changing jobs. Tune in to learn more about the strategies that he incorporates to make time to intentionally support his progress in recovery and wellness.

As Season 2 of the podcast closes with this episode, be sure to listen for exciting new updates about the launch of HSCT Warriors, Incorporated – a nonprofit organization founded by HSCT Warriors to promote awareness of HSCT as a treatment option for autoimmune diseases through education, outreach, advocacy, and personal connections.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday to revisit an episode highlighting a HSCT Warrior from the first season. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Resources noted:
HSCT Warriors, Inc.

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Revisit Bethany’s journey and be inspired to care for yourself and others

Warrior: Bethany
Snowflake: Multiple Sclerosis
HSCT: 03/08/05
Superpower: Heightened awareness

When you need a different course of action, how long will you bide your time? How confident are you among judgement, shock and awe? What will be your mindset at rock bottom?

HSCT Warriors Podcast Ep. 43 (1)

Having so many family members plagued with autoimmune disease, Bethany had just run out of options to treat her MS when her mom happened to watch an interview with Dr. Burt. With a ‘must do’ attitude, Bethany confronted HSCT and the public eye with brave resolve. Proclaiming it to be “literally the best thing that ever happened in my life,” you’ll likely be inspired to shed any fears about HSCT when you hear more of Bethany’s journey.

Tune in to hear more about the reciprocity of community, how Bethany continues to promote HSCT and coach others on their own journeys, as well as insights on why HSCT isn’t an option offered by more doctors.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Resources noted:
Other HSCT veterans
Facebook groups

#MS, #multiplesclerosis, #autoimmunedisease, #HSCTsnowflakes, #HSCTsuperpowers, #snowflakes, #superpowers, #advocacy, #selfadvocacy, #advocate, #selfcare, #rockbottom, #HSCTforMS, #HSCTWarriors, #HSCTWarriorsPodcast, #Podcast

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.

Revisit Eileen’s positive mindset and learn more about the HSCT rollercoaster

Warrior: Eileen
Snowflake: Multiple Sclerosis
HSCT: 01/05/17
Superpower: Knowing you have the rest of your life to look forward to

How much fear do you have when facing uncertainty? How do you adjust when riding a roller coaster? What does normal even feel like?

HSCT Warriors Podcast Ep. 42 (1)

Despite years of debilitating fatigue and cycling through nine different disease modifying therapies, Eileen had a suspicion that someday, stem cells would help alleviate her pain. After researching the possibility of stem cells on her own, she found immediate support from her neurologist to pursue HSCT at Northwestern in Chicago.

Tune in to hear more about her experience of living with MS for twenty years, changes experienced post-HSCT, and learn more about the recovery roller coaster that has been life changing for Eileen.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Resources noted:
Yogaglo
Myofascial release

_________________________________

Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician immediately.