HSCT Warriors Podcast Ep. 12

Warrior: Kevin

Snowflake: Multiple Sclerosis
HSCT: April 2016, Raffles Medical Center, Singapore
Superpower: Novena to St. Jude

When facing the unknown, are you curious about possibilities or do you fear uncertainties? What is the part of your journey that has become too familiar? How can we support each other to mobilize for different outcomes?

If you’ve ever been curious to know more about potential complications or side effects associated with HSCT, meet Kevin, who faced nearly any possible challenge you could possibly face (e.g. failed mobilization, infection in the blood) with HSCT, including travel across the globe to Singapore. Despite facing such significant challenges, tune in to learn more about Kevin’s journey to halt his MS and his continued dedication to recover his physical abilities, and promote HSCT.

Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and perfect the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #MultipleSclerosis, #MSWarrior #HSCTsnowflakes, #HSCTsuperpowers

Resources:

Raffles Medical Center, Singapore: rafflesmedicalgroup.com
Ohio Facebook group: facebook.com/groups/OhioHSCTgroup/

Zen Jen’s blog: Haltmyms.com

WCPO Cincinnati ABC affiliate: wcpo.com

HSCT Warriors Podcast Ep. 11

Warriors: “Zen” Jen & Sara Leah

Snowflake: RRMS
HSCT: October 18, 2017, Northwestern Memorial Hospital
Superpower: Zen

Do you embrace life’s challenges with open arms? One step at a time? As you find your way along your journey, do you pause to reflect in the moment and express gratitude for those who are along with you?

Learn more about the journey of our very own “Zen” Jen, as she shares the mic for a chat with her dear friend Sara Leah and they find commonalities in their unique experiences with MS. With a fun break from the usual interview protocol, enjoy this conversation from the lens of someone curious to know more about HSCT, and in celebration of Jen’s one-year HSCT birthday.

Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to host this interview live in the Belfry; especially for his efforts to create the soundtrack, record, edit, and perfect the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #MultipleSclerosis, #MSWarrior #HSCTsnowflakes, #HSCTsuperpowers

Resources:
haltmyms.com
hsctwarriorspodcast.com
HSCT at Hoxworth Blood Center, University of Cincinnati
HSCT at Clinica Ruiz, Puebla Mexico

HSCT Warriors Podcast Ep. 10

Warrior: Cecilia

Snowflake: RRMS
HSCT: July 11, 2018, Northwestern Memorial Hospital
Superpower: Connections

How positive is your outlook? How empowered do you feel by your faith and innate resilience? When life seems scattered like a puzzle, how do your pieces fit together?

Tune in to learn more about how Cecilia embraces a positive mindset, regular mantras, and her lens of love to face any challenge that presents itself. Within the first six months post-HSCT, Cecilia has found strength in physical therapy, resilience in connections and sharing her experiences, and even found the balance to get back to work part-time.  

Be sure to explore our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, listen to more episodes, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #RRMS, #HSCTsnowflakes, #HSCTsuperpowers

Resources:
Affirmations by Louise Hay


Ep10 Cecilia

HSCT Warriors Podcast Ep. 09

Warrior: Anna

Snowflake: RRMS
HSCT: February 23, 2017, Northwestern Memorial Hospital
Superpower: Running  

How bright is the light you shine on your present situation? What are you committed to, without any doubts or hesitation, to achieve your “next best life”?

After hearing a “no” from her first attempt at HSCT, Anna remained open to try anything (including experimenting with mesenchymal stem cell therapy) to cure her MS. She found herself on Medicare and full-time disability for two years at the end of her late-thirties, so after failing four disease-modifying therapies (DMT) and facing the side-effects of yet another DMT, Anna chose to jump at the chance to revisit her application at Northwestern Memorial.

Tune in to hear more about Anna’s journey with Multiple Sclerosis and the effort she made to prevent her disease from progressing; the “rollercoaster” peaks and valleys of post-HSCT recovery; strategies to battle the chemotherapy-related fatigue, regain confidence, and embrace energy from physical exercise in simple environments; and pursue the best life possible.  

Be sure to explore our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, listen to more episodes, and access the latest HSCT research and resources. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #RRMS, #HSCTsnowflakes, #HSCTsuperpowers

Resources:
Jesus Calling: Everyday Devotions by Sarah Young
Anna’s blog: https://endmyMS.com

HSCTWarriorsPodcast Ep_09

HSCT Warriors Podcast Ep. 06

Warrior: Ron

Snowflake: RRMS
HSCT: May 6, 2017, Puebla, Mexico
Superpower: Advocacy for HSCT

Have you ever learned something that left you at a loss for words? Found yourself tied to the railroad tracks looking for a way to stop the oncoming train?

Meet Ron, a warrior who invested in the “short term pain for long term gain” of HSCT and found courage to face his fears, doubts, and misconceptions in order to commit to Clinica Ruiz in Puebla, Mexico. As an American citizen residing in Canada, he unexpectedly found an extended family and friends in Mexico.

Ron leaped into his journey without looking back, continues to grow his family by embracing a positive outlook, and focusing on the small things to appreciate in life. Tune in to hear Ron’s tips and tricks, encouragement to pursue objective research, and strategies to support a healthy outlook in recovery.

Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Resources:

Ron’s blog: ronniesmstrek.mozello.com
Heavy Metal testing: https://www.doctorsdata.com/urine-toxic-metals/

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #RRMS, #HSCTsnowflakes, #HSCTsuperpowers

HSCT Podcast_Ep.06 Media

 

HSCT Warriors Podcast Ep. 05*

Warrior: Denise

Snowflake: Stiff Person Syndrome
HSCT: 9/12/17, Chicago
Superpower: Increased empathy

Have you ever found yourself distracted by concern for the people in your life that are stressed about your condition? Do you question whether the resources you find when researching your condition are of comparable quality to the resources your doctors can access? Have you learned how to embrace the courage to make your own decisions in healthcare?  

Be inspired to take charge of your health when you meet Denise, a warrior who tapped into her 35 years of service as a trauma-care nurse when diagnosed with Stiff Person Syndrome. Once she started researching the disease, eventual progression, treatment options (e.g. IVIG, plasmapharesis, valium) and their respective side-effects, she informed her neurologist that HSCT would be the only option forward she found to be acceptable.

Tune in to learn strategies for handling the logistics of HSCT, including the importance of building a strong support team, knowing your limits, and finding a purpose. Denise shares insights that help to promote her mental, emotional, and physical recoveries.

*Please forgive the muffled audio of the first few minutes… the home studio operator issues resolve at 8:40. Extra special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible, as Jen continues to find her way with the studio equipment! You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #stiffpersonsyndrome, #HSCTsnowflakes, #HSCTsuperpowers

Have you learned to embrace the courage to make your own decisions in healthcare?

HSCT Warriors Podcast Ep. 03

Warrior: Ellie

Snowflake: RRMS
HSCT: 6/16/16, Chicago
Superpower: Tuning into the body

Do you know the importance of truly understanding your body? Can you get comfortable with letting go of expectations?

Meet Ellie, a warrior diagnosed with multiple sclerosis who received HSCT at Northwestern Memorial Hospital in June, 2016. Ellie initially found HSCT in 2003 but didn’t find herself ready for the procedure until 2015 after a relapse forced her to stop working.

Determined to “stay the course” and not rush into anything, hear more about the benefits of tuning into and getting to know your body throughout the recovery rollercoaster. Ellie shares some of the strategies she uses to tune in and focus on breathing, healing, and well-being.

Tune in to hear more about Ellie’s journey to embrace uncertainty, learn strategies to support the nervous and autonomic systems, and better get to know your body, nutrition, balance and well-being. Continue following Ellie and her abundance of gratitude on her blog: http://HSCTforMS.com

Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Resources noted:

HeartMath: https://www.heartmath.com

Jiyo: https://jiyo.com/home

YogaGlo: http:www.YogaGlo.com

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #RRMS, #HSCTsnowflakes, #HSCTsuperpowers

HSCT Warriors Podcast Ep. 02

Warrior: Dustin

Snowflake: RRMS
HSCT: 4/19/16, Chicago
Superpower: Zen

Do you find yourself struggling to adapt with shifting realities of autoimmune disease? Are you looking to find peace in your life? Or get inspired by transformational journeys?

Meet Dustin, a warrior diagnosed with multiple sclerosis who received HSCT at Northwestern Memorial Hospital, four years after his initial diagnosis. His abilities were rapidly declining, he relied on a cane to walk, and was eager to find a “cure for MS.”

His resolve helped him let go of the need to be in control and stop trying to plan for future uncertainties. He was able to allow Dr. Burt to “take the reigns,” and completely trusted the nurses and staff throughout the HSCT process. Hopefully Dustin finds continued healing and someday soon he will be able to accomplish all that he feels ready for.

Tune in to hear Dustin’s journey with HSCT, his secrets to staying positive and strategies to cope during the two-week-plus long hospital stay where “you’re never alone, but you’re always lonely.”

Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to create the soundtrack, edit, and produce the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

Take a moment to leave a review because your feedback will help to develop even better episodes, and your ratings will help other people find the show. Tune in next Wednesday for a brand new episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers.  Be kind. Be well.

Hosted by: Dr. Jen Stansbury Koenig aka “Zen Jen”
Tags: #HSCT, #HSCTwarriors, #autoimmunedisease, #RRMS, #HSCTsnowflakes, #HSCTsuperpowers